Guidelines for Navigating Human Subjects Review and Preparing Data Sets for Sharing with the ISDS Technical Conventions Committee

Atar Baer, Marcus Rennick, Aaron Kite-Powell, David Atrubin


The purpose of this panel is to facilitate the dissemination of surveillance-related use cases by public health practitioners with accompanying benchmark datasets to method developers. The panel will present their experiences with preparing patient-level emergency department data sets to accompany a use case submitted to the ISDS Technical Conventions Committee. We will review methods for cultivating a data set that is appropriate for sharing; experiences with and strategies for navigating the IRB human subjects review process; and legal and ethical issues related to sharing syndromic surveillance data with third parties.

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Online Journal of Public Health Informatics * ISSN 1947-2579 *